Baylen Dupree-Dooley wants viewers to see Tourette’s syndrome as she lives it, not as a label. As Season 3 of Baylen Out Loud premiered on May 19, she said her goal has stayed the same: to show the daily reality of a chronic neurological disorder that causes involuntary motor and vocal tics, and to explain why she will not pretend her experience is anyone else’s.
“I’m not representing everybody with Tourette. I’m representing me and how I live with this condition and how I’m growing with this condition,” she said. Dupree-Dooley, who was diagnosed with Tourette’s syndrome at the Mayo Clinic in 2020 at age 18, also has coprolalia, an involuntary vocal tic that involves obscene or offensive words and phrases. It affects only about 10% of people with Tourette’s, and she was not diagnosed with it when she first learned she had the disorder. She said her coprolalia progressed as her tics did, and that reality has made ordinary tasks more complicated than most people realize.
That is part of why she began telling her story on social media in the first place. She said she did not want to hide from herself anymore, and the show followed that decision into a much larger spotlight. Baylen Out Loud first premiered on TLC in January 2025, giving her a wider platform to talk about the parts of Tourette’s that are often misunderstood or mocked. She has used both social media and the series to press the same point: Tourette’s is not a punch line, and the people living with it are not looking for sympathy so much as recognition.
The condition reaches into the most basic parts of the day. Dupree-Dooley has said she sometimes needs someone else to drive her or must take a rideshare instead of getting behind the wheel herself. She has also described kitchens as dangerous places because of sharp utensils, a hot stove and breakable dishes. Even public places can become a social challenge, she said, because coprolalia can make a grocery store or restaurant feel loaded before she ever walks in. In Season 2, she and Colin Dooley moved into their own apartment outside Washington, D.C., and the couple also traveled to the U.K. to try Neupulse, a wearable device that helps suppress motor and vocal tics and is currently available only there.
The friction in her story is that visibility does not make the disorder simpler. Dupree-Dooley has built a public platform around showing Tourette’s honestly, yet she is still navigating safety, mobility and social stigma in private. She said, “Tourette’s syndrome is looked at in a negative way, and my entire platform is about bringing it to light and being myself, because at the end of the day, we are only one person.” Earlier this month, she and Colin Dooley tied the knot, adding a new chapter to a life that is already being watched closely by an audience she is determined not to flatter with a polished version of her condition.
Her message is blunt because the diagnosis has been blunt. “It’s very, very important to be yourself in a world full of people that want to be everybody else,” she said. And for Dupree-Dooley, the point of all this visibility is not to speak for every person with Tourette’s, but to make one thing harder to ignore: the more honestly she tells her own story, the harder it becomes to look away from the disease she has spent years trying to explain.
